The Hepatitis C Mentor and Support Group, Inc.
The Hepatitis C Mentor and Support Group, Inc. was established to address the lack of supportive services for people living with Hepatitis C (including patients co-infected with other conditions such as HIV/AIDS and Hepatitis B) by fostering the develpment and operation of successful support groups for patients and by offering one-on-one mentoring services to Hepatitis C and liver transplant patients. Effective patient support groups and mentoring services have been shown to be important elements of healthcare for people living with hepatitis C and other serious conditions. These services reduce overall healthcare costs, improve medical outcomes, and enhance the quality of life of individual patients.
The Hepatitis C Support Group Assistance Program is the first initiative of The Hepatitis C Mentor and Support Group, Inc. The program is designed to provide resources and services to organizations and individuals trying to establish or run support groups for people with Hepatitis C (including co-infected patients).
Services are provided free of charge and include:
1. a website (www.hepatitiscmsg.org), blog and social media updates to provide up-to-date information to support group facilitators and patients on Hepatitis C facts and statistics, reports and other resources, a list of all support groups in New York State, patient assistance programs, etc;
2. meeting facilitation training and training materials;
3. a roster of experts to speak at support group meetings on a topics such as disease and treatment research findings, drugs in development, nutrition, relaxation, and other lifestyle issues;
4. conference calls and virtual or face-to-face meetings of facilitators to share information, resources, and best practices.
We plan to act as a coordinating hub for support group facilitators in New York. These services are available to all organizations and individuals that help Hepatitis C and co-infected patients in New York, but we provide special outreach and attention to underserved populations and geographic areas.